HLH-Registry for adult patients

Hemophagocytic lymphohistiocytosis (HLH) is a serious hyperinflammatory syndrome that is triggered by infections, malignomas or autoimmune diseases in predisposed patients.
On this website we would like to inform physicians about diagnosis and treatment of HLH in adults and give the opportunity to contact us concerning questions about your HLH-patients. Furthermore, we would like to motivate colleagues to include patients into the HLH-registry for adults to gain more knowledge about a clinical syndrome that is still associated with a high mortality.
Please notice our Flyer. Critical comments are welcome to improve this website in the future.

Registry

For the systematic collection of adult patients with HLH a registry database was established at the University Hospital Jena. Clinical and laboratory data are registered in a pseudonymised way.

Relatives

You or your family member was diagnosed with acquired haemophagocytic lymphohistiocytosis (HLH) by the treating physicians . On our website we provide you with informations about this rare syndrome.